OCD

Summary

Obsessive-Compulsive Disorder (OCD) is a mental health condition involving obsessions, compulsions, or both. It can affect people of any age and can have a significant impact on everyday life, relationships, education, work and wellbeing. OCD is not simply about being neat, tidy or wanting things to be in a particular place. It can involve unwanted thoughts, images, urges or doubts, as well as behaviours or mental processes that someone feels driven to carry out to reduce distress or prevent something bad from happening.

Obsessions are intrusive and recurring thoughts, images, urges or doubts that cause significant anxiety, discomfort or distress. They may be about almost anything and can sometimes feel completely out of character. Someone might worry that they have accidentally harmed somebody, that they are contaminated, that they might make a serious mistake, that something bad will happen unless they do something correctly, or that an unwanted thought says something important about who they are. Other people may experience intrusive sexual, religious or relationship-related thoughts. Having an intrusive thought does not mean that someone wants the thought to happen or that it reflects their intentions or character.

Compulsions are behaviours or mental acts that someone feels driven to perform in response to an obsession, anxiety or a feeling that something is not quite right. Physical compulsions can include washing, checking, counting, arranging, touching, repeating actions or asking other people for reassurance. Mental compulsions can be much harder to recognise because they happen internally. Someone might repeatedly analyse a thought, review a memory, check how they feel, mentally repeat words, try to prove that something is or is not true, or search for complete certainty. Compulsions are often an attempt to reduce distress or prevent a feared outcome, but the relief they provide is usually temporary.

This can create a cycle where an intrusive thought or doubt leads to anxiety or discomfort, which leads to a compulsion, avoidance or reassurance seeking. The action may make the person feel better for a short time, but the doubt can return. When this happens repeatedly, the brain can begin to learn that the compulsion is necessary to feel safe or certain, making the cycle increasingly difficult to break.

OCD can take many different forms, and the content of someone’s symptoms does not necessarily tell you anything about their personality or values. Someone who experiences intrusive thoughts about harming another person may be deeply frightened by the idea and have no desire to act on it. Someone with relationship-focused OCD may repeatedly question whether they really love their partner, while someone with contamination concerns may spend large amounts of time washing or avoiding particular places. Other people may experience fears about responsibility, religion, sexuality, making mistakes, symmetry, health or uncertainty. These themes can overlap and can change over time.

Some people experience what are sometimes described as purely obsessive symptoms, although mental health professionals generally recognise that mental compulsions are still compulsions. Someone may appear to be doing nothing while internally analysing, checking, reviewing or seeking certainty. For example, they may repeatedly ask themselves whether they are a good person, mentally replay a conversation to check whether they did something wrong, or monitor their feelings to determine whether they are experiencing the right emotion. Because these compulsions are invisible, the person may not realise that what they are doing is maintaining the OCD cycle.

Reassurance seeking can also become part of OCD. Someone may repeatedly ask a friend, family member or professional whether something is safe, whether they have done something wrong or whether a feared event is likely to happen. They may repeatedly search online or ask the same question in slightly different ways. Reassurance can feel helpful in the moment, but if it becomes something the person feels they must obtain before they can move on, it can reinforce the idea that they need certainty in order to feel safe.

OCD can involve a strong fear of uncertainty. Someone may feel that they cannot make a decision, leave the house, complete a task or continue with their day until they are completely certain that everything is okay. However, complete certainty is rarely possible. Attempts to achieve it can lead to repeated checking, researching, analysing, comparing, remembering or asking for reassurance. Treatment often focuses on helping someone tolerate uncertainty rather than trying to remove every possible doubt.

OCD can be extremely time-consuming and exhausting. Someone may spend hours completing compulsions, avoiding situations that trigger their symptoms or trying to work out whether their thoughts mean something. This can affect concentration, sleep, school, university, work, relationships and social activities. Someone may arrive late because they have needed to complete rituals, avoid going out because of contamination fears, or struggle to focus because they are mentally reviewing something that happened earlier.

OCD can also be hidden from other people. Someone may feel embarrassed or frightened about the content of their intrusive thoughts and worry that other people will misunderstand them. They may therefore hide their symptoms, even from people they trust. This can make OCD particularly isolating and can delay someone from accessing support.

OCD is not caused by weakness, a lack of willpower or simply being too particular. People with OCD often recognise that their thoughts or compulsions are excessive or unreasonable but still feel unable to stop them. Understanding that the symptoms are part of a recognised mental health condition can help reduce shame and make it easier to seek appropriate treatment.

OCD can occur alongside other mental health difficulties, including anxiety and depression. Experiencing occasional intrusive thoughts, worrying about something or having a preference for cleanliness does not automatically mean someone has OCD. A professional assessment considers how persistent and distressing the experiences are, how much time they take up and how significantly they interfere with everyday life.

OCD is treatable, and many people experience significant improvement with appropriate treatment. Treatment does not usually involve trying to eliminate every intrusive thought. Instead, it can involve learning to respond differently to thoughts, uncertainty and anxiety and gradually reducing compulsive behaviours and avoidance. If OCD is taking up a lot of your time, causing significant distress or stopping you from doing things you want or need to do, speaking to a GP or mental health professional can be an important first step.

How to help myself

It can be useful to start by learning about your own OCD cycle. Notice what tends to trigger your intrusive thoughts or doubts, what feelings they create and what you do afterwards to try to feel better. You might notice that you check, avoid, analyse, research, ask for reassurance or carry out a particular ritual. Understanding this pattern can help you recognise that the temporary relief from a compulsion can keep the cycle going, rather than meaning that you have genuinely resolved the worry.

Try to remember that an intrusive thought is not the same as an intention. People can experience thoughts that are frightening, embarrassing, violent, sexual, religious or completely inconsistent with their values. Having a thought does not mean that you want it to happen, that it says something about your character or that you are more likely to act on it. OCD can make thoughts feel particularly meaningful or threatening, so it can help to notice the thought without automatically treating it as evidence.

Be aware of how much time you spend trying to work out what a thought means. You may find yourself asking whether a thought was real, whether you genuinely meant something, whether you are a good person, whether you can be completely certain or whether you feel the right way about something. Although analysing these questions can feel like problem-solving, repeated analysis can become a mental compulsion. When possible, try to notice when you are getting caught in this process rather than continuing to search for an answer that feels completely certain.

Reassurance can work similarly. It is understandable to want someone to tell you that everything is okay, particularly when you are very anxious. However, if you find yourself repeatedly asking the same question, searching online or checking with different people until you receive an answer that feels reassuring enough, this may be part of the OCD cycle. Treatment can help you gradually tolerate the uncertainty that OCD finds difficult rather than relying on reassurance to make the anxiety disappear.

Avoidance can also maintain OCD. You might avoid touching certain objects, being around particular people, going to certain places, making decisions or doing things that might trigger an intrusive thought. Avoidance can reduce anxiety temporarily, but it can also reinforce the idea that the situation is dangerous or that you cannot cope with the uncertainty. If you are receiving ERP or another evidence-based treatment, your therapist can help you gradually approach situations that you have been avoiding in a safe and manageable way.

Try not to judge yourself for experiencing setbacks. OCD symptoms can become stronger during periods of stress, tiredness or change, and having a difficult day does not mean that you have failed or gone back to the beginning. Progress may mean noticing an intrusive thought without engaging with it, delaying a compulsion, asking for less reassurance or continuing with an activity despite feeling uncertain.

Maintaining ordinary routines can also help protect your general wellbeing. Regular sleep, eating, movement, social contact and activities that you enjoy will not remove OCD, but they can give you other parts of life to focus on and reduce the amount of time the condition occupies. Try to keep doing things that are meaningful to you rather than allowing OCD to gradually determine where you go, what you do or who you spend time with.

If OCD is interfering with school, university, work, relationships, sleep or everyday activities, consider speaking to your GP or a mental health professional. You do not need to know exactly what type of OCD you have before asking for help. If you find it difficult to explain your symptoms, you can write them down beforehand, including examples of intrusive thoughts, compulsions, avoidance or reassurance seeking.

If you are already receiving treatment, be open with your therapist about the things you find most difficult, including symptoms that feel embarrassing or frightening. OCD can involve thoughts that people are reluctant to disclose because they fear being judged. Professionals who work with OCD are familiar with intrusive thoughts and can help you understand them without treating the content of the thought as evidence of your intentions.

How to help a loved one

Try to create a space where the person can talk about their OCD without feeling embarrassed or judged. Some intrusive thoughts can be extremely distressing, particularly when they conflict with someone’s values or feel completely out of character. Listen to what they are experiencing without assuming that the content of a thought represents something they want to happen.

It can be tempting to repeatedly reassure someone that their fear will not happen or that they have not done anything wrong. While reassurance can feel supportive, repeatedly providing it can sometimes become part of the person’s compulsions and maintain the OCD cycle. If someone asks you the same question repeatedly, you can respond with empathy without continually providing certainty. For example, you might acknowledge that they are feeling anxious and encourage them to use the strategies they have discussed with their therapist.

Families and friends can sometimes become involved in compulsions without realising it. You might check something for the person, answer repeated questions, help them avoid a feared situation, participate in rituals or change your own routines around their OCD. These actions are often done because you want to reduce their distress, but they can unintentionally strengthen the belief that the compulsion is necessary. If this is happening, professional support can help you work out how to respond in a way that is supportive without reinforcing the OCD.

Try not to tell someone to just stop their compulsions or make fun of their rituals. OCD is not simply a habit that someone can switch off through willpower. At the same time, you do not need to participate in compulsions simply because someone asks you to. A therapist can help families agree on appropriate ways of responding.

Encourage the person to access appropriate treatment if OCD is significantly affecting their life. You could offer to help them make an appointment, write down their symptoms, travel to an appointment or simply listen afterwards. However, try to avoid taking complete responsibility for their recovery. The person should remain involved in decisions about their treatment wherever possible.

Be patient if treatment feels difficult. Evidence-based OCD treatment can involve deliberately approaching things that trigger anxiety and reducing compulsions, which can feel uncomfortable at first. Someone may experience setbacks or have periods where their symptoms become more noticeable. This does not necessarily mean that treatment is not working.

Try to keep the person’s life broader than their OCD. Encourage ordinary activities, friendships, hobbies and routines where possible rather than allowing the condition to dictate everything the household does. This should be balanced with understanding that severe OCD can make some activities genuinely difficult.

Avoid using OCD as a casual term for tidiness, perfectionism or being particular. Comments such as You’re so OCD can reinforce misunderstandings about the condition and may make someone feel that their symptoms are not being taken seriously.

If someone tells you about intrusive thoughts involving harm, sex, religion or another sensitive topic, focus on the distress caused by the thoughts rather than assuming they reflect their intentions. If you are worried about immediate risk, ask directly about safety and seek professional advice rather than trying to assess the situation yourself.

Supporting someone with OCD can also be difficult for family members and friends. You are allowed to have your own boundaries and ask for support. You can care about someone while recognising that their recovery is not your responsibility to manage alone.

Myth Buster

Myth: OCD just means being very tidy or organised.
Truth: OCD involves obsessions, compulsions or both that cause significant distress or interfere with everyday life. Someone can have OCD without being particularly tidy or organised.

Myth: Everyone has OCD sometimes.
Truth: Many people experience occasional unwanted thoughts or repetitive behaviours. OCD involves symptoms that are persistent, distressing or time-consuming and have a significant impact on someone’s life.

Myth: People with OCD can simply stop their compulsions.
Truth: Compulsions can feel extremely difficult to resist. Treatment can help someone gradually change their response to obsessions and reduce compulsive behaviours.

Myth: Having a violent or sexual intrusive thought means you want to act on it.
Truth: Intrusive thoughts can be unwanted and completely inconsistent with someone’s values or intentions. Having a thought does not mean you want it to happen or that you will act on it.

Myth: OCD is always about contamination and handwashing.
Truth: OCD can involve many different themes, including checking, harm, relationships, religion, sexuality, responsibility, mistakes, symmetry and uncertainty.

Myth: Compulsions are always visible.
Truth: Compulsions can happen entirely in someone’s mind. Mental reviewing, analysing, counting, checking feelings and seeking certainty can all become compulsive behaviours.

Myth: Reassurance always helps someone with OCD.
Truth: Reassurance can reduce anxiety temporarily, but repeated reassurance can become part of the OCD cycle and reinforce the need for certainty.

Myth: Someone who knows their fear is unlikely cannot have OCD.
Truth: Someone can recognise that a fear is unlikely or that a thought does not make sense while still experiencing intense anxiety and feeling driven to carry out compulsions.

Myth: You have to get rid of intrusive thoughts to recover from OCD.
Truth: Treatment generally focuses on changing how you respond to intrusive thoughts and uncertainty rather than trying to eliminate every unwanted thought.

Support

If OCD is causing significant distress, taking up a lot of time or interfering with your education, work, relationships or everyday activities, consider speaking to your GP or another mental health professional. You do not need to wait until your symptoms become severe, and you do not need to know exactly what type of OCD you have before asking for support. You can describe the thoughts, feelings, behaviours and situations you are struggling with in your own words.

It can help to explain how much time OCD takes up and what it stops you from doing. For example, you might spend a long time checking, washing, researching or seeking reassurance, or you might avoid certain places and activities because of your fears. These details can help professionals understand the impact of your symptoms rather than simply focusing on the content of your thoughts.

If you are at school, college or university, you may also have access to wellbeing, pastoral or counselling services. These services may be able to provide support while you consider whether you need further assessment or treatment. If OCD is affecting attendance, concentration, deadlines or participation, it may also be worth discussing what practical adjustments could help.

If you are supporting someone with OCD, you can seek advice too. It can be difficult to know when reassurance is helpful and when it may be reinforcing compulsions, particularly if the person is asking you to participate in rituals or repeatedly confirm that something is safe. A professional can help you understand how to respond without withdrawing emotional support.

OCD can sometimes be hidden because people feel ashamed of their thoughts or worry that other people will misunderstand them. Intrusive thoughts can involve subjects that feel frightening, taboo or completely inconsistent with someone’s values. Being able to talk openly with an appropriate professional can help separate the content of the thought from the meaning the person has attached to it.

If you are already receiving treatment but feel that it is not helping, speak to your therapist, GP or mental health team rather than stopping treatment without discussing it. Different approaches may be available, and treatment may need to be adapted to the particular symptoms you are experiencing.

If OCD is significantly affecting your ability to eat, sleep, attend school or work, leave the house, maintain relationships or manage basic daily activities, let a professional know. These difficulties can indicate that you need additional support.

If you are experiencing thoughts of suicide or self-harm alongside OCD, tell someone you trust and seek professional support. If you are in immediate danger or cannot keep yourself safe, call 999 or go to A&E. For urgent mental health support in England, you can also contact NHS 111.

Therapy interventions

Different treatments can help with OCD. The most appropriate approach depends on the person’s symptoms, circumstances, preferences and the impact OCD is having on their life. Psychological treatment often focuses on changing the person’s response to intrusive thoughts and reducing the compulsions and avoidance that maintain the OCD cycle.

  • Cognitive Behavioural Therapy (CBT) – helps you understand the links between thoughts, feelings and behaviours and how compulsions and avoidance can maintain OCD. CBT can help you develop different ways of responding to intrusive thoughts and anxiety.
  • Exposure and Response Prevention (ERP) – is a form of CBT and one of the main psychological treatments for OCD. It involves gradually approaching situations, thoughts or triggers that cause anxiety while reducing or resisting the compulsive response. This is normally planned collaboratively with a trained therapist and progressed at a manageable pace.
  • Acceptance and Commitment Therapy (ACT) – can help you respond differently to unwanted thoughts and feelings rather than becoming caught up in trying to eliminate or control them. It can also support you to make choices based on your values even when OCD-related anxiety or uncertainty is present.
  • Medication – Selective Serotonin Reuptake Inhibitors (SSRIs) may be prescribed for OCD and can be used alongside psychological treatment. A GP or psychiatrist can discuss whether medication may be appropriate, including potential benefits, side effects and how it will be monitored.
  • Psychoeducation – helps you understand OCD, the obsession-compulsion cycle, intrusive thoughts, reassurance seeking and avoidance. Understanding how OCD works can reduce shame and make it easier to recognise when symptoms are taking over.
  • Family Therapy or family-focused support – can help families understand OCD and develop ways of responding that provide emotional support without repeatedly participating in compulsions or reassurance. It can also help reduce conflict and improve communication around treatment.
  • Specialist OCD services – people experiencing persistent, severe or complex OCD may be referred to specialist services for further assessment and treatment. Specialist teams may offer more intensive psychological treatment and support when standard approaches have not been sufficient.

Helplines

OCD-UK 

OCD-UK is a UK charity providing information, support and resources for people affected by Obsessive-Compulsive Disorder (OCD), including people with OCD, their families and carers. It provides information about OCD, treatment options and accessing appropriate support.


Phone:
01332 588112
Opening times: 10 am–2 pm
Email: support@ocduk.org
Website: www.ocduk.org

OCD Action

OCD Action provides free, confidential and unbiased information and support for people with OCD, related conditions, carers and people concerned that they or someone they know may have OCD. It provides information about OCD, recommended treatments, and access to support and peer support opportunities.

Phone: 0300 636 5478
Opening times: 9:30 am–8 pm, Monday–Friday
Email: support@ocdaction.org.uk
Website: www.ocdaction.org.uk

No Panic

No Panic is a charity providing information, advice and support for people experiencing panic attacks, phobias, obsessive-compulsive disorder (OCD) and other anxiety-related difficulties. They also provide support for young people and carers.

Phone: 0300 772 9844
Opening times: 10 am–10 pm, every day of the year
24-hour crisis message: 01952 680835
Email: info@nopanic.org.uk
Website: http://www.nopanic.org.uk
Youth support: youth@nopanic.org.uk

NHS 111 (Option 2)


NHS 111 is an NHS service providing urgent medical and mental health advice and support. It can help with mental health concerns, emotional distress, anxiety, low mood, suicidal thoughts and other urgent health problems. 

Phone: For mental health support, call 111 and select the mental health option (option 2).
Opening times: Available 24 hours a day, 7 days a week.

Samaritans

Samaritans is a charity providing emotional support to anyone who is struggling to cope or needs someone to talk to. They are there for people experiencing all sorts of difficulties, including stress, anxiety, loneliness, relationship or family problems, bereavement, feeling overwhelmed and concerns about mental health or suicide.

Phone: 116 123
Opening times: 24 hours a day, 7 days a week, 365 days a year
Website: www.samaritans.org

Shout

Shout is a free, confidential text messaging service that provides support to anyone who is struggling to cope. It can help with a wide range of issues, including stress, anxiety, low mood, loneliness, relationship difficulties, bullying, self-harm, suicidal thoughts, feeling overwhelmed and other mental health challenges.

Text: SHOUT to 85258
Opening times: Available 24 hours a day, 7 days a week, 365 days a year
Website: http://www.giveusashout.org

Mind

Mind is a mental health charity providing information, advice and support for people experiencing mental health difficulties. They cover a wide range of mental health and wellbeing issues, including anxiety, depression, stress, relationships, loneliness, coping with difficult experiences and managing everyday life. Mind provides information to help people understand what they are experiencing, know their rights, find appropriate support and feel less alone.

Phone: 0300 123 3393
Opening times: 9am–6pm, Monday to Friday (excluding bank holidays)
Email: info@mind.org.uk
Website: www.mind.org.uk

YoungMinds

YoungMinds is a national charity supporting the mental health and wellbeing of children and young people. They provide information, advice and support for parents and carers who are concerned about a young person’s mental health, and help people understand mental health difficulties, find appropriate support and access useful resources. Their Parents Helpline can provide information, advice, emotional support and signposting to other services. 

Parent helpline: 0808 802 5544 (9:30 am – 4 pm on Mondays, Thursdays and Fridays, and from 9:30 am – 6 pm on Tuesdays and Wednesdays)
Email: parents@youngminds.org.uk
Webchat: https://www.youngminds.org.uk/parent/parents-helpline/

Childline
Childline is a free service for young people to talk to a counsellor about anything. The service is available 24 hours a day, 7 days a week. Childline is available to anybody who is 18 years old or younger.

Phone: 0800 1111
Opening times: Available 24 hours a day, 7 days a week, 365 days a year
You can also find helpful resources, speak to a counsellor online or send a message on their site.
Website: www.childline.org.uk

For adults concerned about a child, the NSPCC can be contacted 

NSPCC

NSPCC is a children’s charity that works to protect children and prevent abuse and neglect. They provide support and advice for adults about child abuse, neglect, child safety, online safety and children’s mental and emotional wellbeing. 

Phone: 0808 800 5000
Opening times: 10 am–4 pm, Monday–Friday
Email: help@nspcc.org.uk
Email opening times: 11 am–4 pm, 7 days a week
Website: www.nspcc.org.uk

CALM (Campaign Against Living Miserably)

CALM (Campaign Against Living Miserably) is a charity providing support for people who are struggling with their mental health or experiencing emotional distress. They support people with issues including low mood, anxiety, loneliness, stress, suicidal thoughts and difficult life experiences.

Phone: 0800 58 58 58
Opening times: 5pm–midnight, every day
Webchat: 5pm–midnight, every day
WhatsApp: Available through the CALM website
Website: www.thecalmzone.net